Privacy Policy

The Pediatric Neuro-Oncology Consortium (PNOC) knows that you care about how your information is used and shared. PNOC takes seriously the protection of your privacy. Please read below about how PNOC uses and protects information collected through our websites.

What Does This Website Privacy Policy Cover?

This Policy covers how PNOC collects, uses, and shares website user data.

Collection of Data

This Policy covers the treatment of two types of information collected on our websites:

  • Personally identifiable information. Personally identifiable information, such as email address, name, phone number, etc., may be gathered when you access or use our website. This information is only collected when it is volunteered by you – for example when you complete a form to contact us.
  • Non-personally identifiable information. This site may collect, at least temporarily, non-personally identifiable information such as: Internet Protocol (IP) address of computer being used; web pages requested; referring web page; cookies; browser type used; date and time; and other Internet tags and navigational data.

Use of Data

Personally identifiable information may be collected to respond to user requests for information.

Non-personally identifiable information may be collected to improve the PNOC website user experience and for troubleshooting.

Cookies, Web Beacons and Other Similar Technologies

This website may partner with third parties, including Facebook (Facebook Pixel) or Google (Google Analytics), to use cookies, web beacons, and other storage technologies to collect or receive information from this site and elsewhere on the Internet and use that information as part of targeted advertising or remarketing. These companies collect information from across the Internet and are not controlled or managed by PNOC. You can opt out of having your browsing data collected by these companies by managing your ads preferences or privacy settings on these companies’ websites.

If you wish to opt out of these analytics tracking services, visit these websites at the following links:

Sharing of Data

Other than as required by laws that guarantee public access to certain types of information, or in response to subpoenas or other legal instruments that authorize disclosure, personally identifiable information is not disclosed without your consent.


If this website collects restricted information, including but not limited to, electronic protected health information (ePHI) or personally identifiable information (PII), PNOC requires the use of the industry standard security protocol known as Secure Sockets Layer (SSL).

Links to External Sites

This site may contain links to external websites. PNOC is not responsible for the privacy policies or practices on websites that may be accessed through these external links. When following a link to another website, you are responsible for reading that website’s privacy policy and making sure that you agree with it and can abide by it.

Links within this website to commercial and external websites do not represent endorsement by PNOC.

Changes to This Website Privacy Policy

This Website Privacy Policy is effective as of April 15, 2021. We may amend this Policy from time to time. New versions of this Policy are effective when they are posted at this URL. Unless stated in an updated version, use of the information that we collect will be subject to the version of the Policy that was in effect at the time such information was collected.

Questions / Contact Us

If you have any questions about this Website Privacy Policy, you may contact the domain host via the contact form.


This Website Privacy Policy shall be governed by and construed in accordance with the laws and regulations of the State of California.