Advanced practice providers (APPs) and nurses are instrumental in carrying out the mission of PNOC and providing access to clinical trials for children with brain tumors. Our adult and pediatric colleagues have led an effort to engage nursing and nurse scientists in collaborative work within clinical trial consortiums. These groups have recognized untapped areas of research including fatigue, patient and family education, symptom management, fertility, family coping, quality of life, long-term sequelae of treatment and other areas of survivorship. Formalizing the incorporation of an APP and nursing group creates an opportunity to enhance the work of PNOC surrounding the clinical care of children with brain tumors and the illness experience of patients and their families. Our committee will directly mirror the mission and core values of PNOC.
Our group was implemented in March 2021 and we are currently in our infancy stage of planning and development. Our first project is conducting a needs assessment survey of physician, nursing, APP and clinical research coordinators (CRCs) associated with PNOC. This survey will go out to all PNOC participating sites. This data will inform us on how to define the function and structure of this new group.
Our current goals of this group includes: